Living with Duchenne Muscular Dystrophy (DMD)

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World Duchenne Day 2021

Prior to my diagnosis of Duchenne Muscular Dystrophy (DMD) I grew up not knowing I had it and even my parents didn’t know. Also, as I was the third child (first boy) it was slightly unlikely. Of course we eventually knew that boys were mostly affected and how it can be passed down in the family.

Moving on, I started to go to nursery as any child would. I don’t remember much, but I do remember walking with my mother to school. A few months later, my mother received a phone call from school telling her that I kept falling frequently and was moving much slower than other kids. This was a serious concern for them and they suggested I should be checked out.

At this point, it was clear what was wrong with me. I was diagnosed with Duchenne Muscular Dystrophy. From this point on, my future was full of questions and uncertainty, as I didn’t know how it would effect me. From that point on I continued to move forward. I would experience being wheelchair bound and weak whilst enjoying my primary school days.

When the time was right I would later make my transition to my new special needs school. Going to this school helped me become who I am today and gave me the confidence to become independent as a disabled person.

My future may not be clear, I may have a disability but this will not stop me from achieving my dreams.

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